Thursday, June 3, 2010

Every Day Gives a New Challenge

We just finished lunch provided by Gator Domino's and the March of Dimes. Lots of people are here sharing stories about their babies. We're not alone and these families have been through a lot, so when you go to pray for Ginny, remember them too.

Part of Ginny's cardiac defect is an Atrial Septum Deviation (ASD). ASD is a hole in the wall between the left and right atrium. With all of Ginny's other problems, the fact that she has a medium-sized ASD is actually a good thing. It allows oxygenated and unoxygenated blood to mix, counteracting the TGA. This afternoon she will have to undergo a procedure that will enlarge her ASD to make sure it stays open long enough for her pulmonary hypertension (PPHN) to clear up before the TGA repair surgery. They will insert a catheter into her leg, run it up to her heart and inflate a balloon in the ASD to stretch it a little. As sensitive as she has been, there was some debate amongst the team about whether we should do the procedure today or wait until Monday. With consultation from one of the best pediatric cardiologists in the country, we decided that the procedure had to be done today. It is a risk, given her sensitivity, but the benefit could be a great increase in her oxygen sats. If for some reason the procedure aggravates her PPHN, we may have to go with a much riskier and invasive treatment. We have not yet spoken with the cardiologist that will perform the procedure, so we have a little time. Keep us in your thoughts and prayers as we face this new challenge.


  1. We are praying for you Ginny! Keep fighting!

  2. Holding you close in thought as you go through another day of ups and downs -- praying for more ups for Ginny and more strength to see you all through.

  3. Ginny
    We love you and are looking forward to meeting you. Keep fighting and show your Dad and Mom how determined you are. You are on Calvary Chapel prayer chain and they remember how determined your Dad was. Keep up the good work.
    Love Meme and Grandpa

  4. Keeping you in my thoughts and prayers. Saying extra prayers today...Deb Burch