Wednesday, June 30, 2010

Evening Progress Report

Ginny is doing well. She has been weaned down to 12 ppm on the nitric oxide, but still at 50% oxygen. She has also been weaned off insulin. The nurses spent most of the day trying to keep her blood pressure in a good place, her heart at a good rhythm, and getting her sedation just right. This kid is quite a fighter. She was trying to beat over the pacemaker and didn't want to take the sedation. We have convinced her that all this stuff is for her own good and everyone is very happy with her progress. We were told by one of the doctors that we should be able to close her chest in 2 to 3 days. A good, boring day.

I said I wouldn't post any more pictures of Ginny, but just to give you an idea of what it is like in here, I'm going to share this one picture with you.

This is the view from my chair. In the foreground you can see 8 of her 14 IV pumps (one was added over night) and her food pump. (Ginny has a tube that goes through her nose, down her esophagus, and through her stomach to the first part of her intestine. She gets 1 cc an hour through this tube just to keep her guts working. Maybe the hospital has some kind of deal with Pampers - I don't know.) To the left you can see her nitric oxide system and the ventilator screen behind that. Behind the IV pumps is baby Ginny. It can be kind of intimidating, but we have gotten quite an education over the last month, so it is a little less so. Also, note the Gator mobile keeping an eye on her.


  1. I am so glad that the surgery went well and that Ginny is making such a tremendous amount of progress! I know that you two have heard this a thousand times already, but the strength and courage that you guys show on a daily basis is more than admiral, it is truly a gift and a blessing. Your little girl needs you to be strong for her and you are doing just that! Hang in there...the light at the end of the tunnel is getting much clearer every day! If you need anything at all or just a minute away from the hospital...let us know. TJ and I are always around and would love to help in any way that we can! Kelly

  2. Ginny,
    We are so proud of you and the progress you are making! We are going to continue to pray for you. We can't wait to see you, hold you, and smooch you up! RitaMarie can't wait to play with you. Keep fighting and we will see you soon.
    Aunite Cole, Auntie Jen, and RitaMarie

  3. Cannot believe how strong you are. Although now thinking back, yes I can. God is with you and we are praying every day for you and Ginny. May he bring you all the strength and faith you need.
    Lots of Love,
    The Seaman Family

  4. Jason
    Wendy & I were looking at the video you guys took and heard you say. "I ain't givin you away" to Miss Ginny. LOL LOL Now you know why I said that.
    Then you said "No boys until your 30" LOL
    "SCUBA Steve".....
    Love to all