The Grind

Today was another "sideways day". During rounds this morning the plan was for Ginny to come off the CPAP and go with just the nasal cannula. She had other plans. Rachel had held her for a little while and then went out to the waiting room for something. When she put Ginny back in the crib, she was pretty fussy. I decided I would hold her to try to console her for a little while. It didn't console her much. Her sats dropped to the high 60's or so and she got a little rash on her chest. We put her back in the crib and started her back on the CPAP. We changed her diaper and her bedding, and after a short while, her sats were back in the 90's. We're not exactly sure what that was all about, but one theory is that she is allergic to my laundry detergent. I guess I'll stop doing laundry. She spend the rest of the day a little fussy, but otherwise great.

The surgeon came by in the afternoon and told us that he has tentatively scheduled Ginny's surgery for Tuesday (6/29). Very good news, but keep in mind we said tentatively. I don't think she has to come all the way off the CPAP, but that would be good. She also has to stay infection-free, and it would be really good for her if she could learn how to feed. Like everything else associated with parenting, it's a marathon, not a sprint.