Wednesday, June 2, 2010

A Rough Night

Last night about 3 am, I apparently woke up and told Rachel that something was wrong. I don't remember this, but she tells me I told her to call Shands. The nurses told us that Ginny was having a rough time. Her blood oxygen saturation levels (sats) had dropped and she needed to have her lungs suctioned. She is not a real big fan of that to say the least. So this morning she is stable, her sats are good, but they had to increase her oxygen level to 85% from 75%. We would really like that number to go in the other direction, but we are still ok for now. The doctors tell me that her oxygenation (receiving oxygen) is doing well, but she is not ventilating (removing carbon dioxide) as well as she should. Another issue is that Ginny keeps trying to breathe on her own, which they think may be working against the oscillator. This morning they are going to give her a paralytic medication that will stop her from trying to do stuff on her own and see if the ventilation issue gets better. The doctor also discussed some treatments in the research phase on some inhaled medications for this condition, but it has only been tried in about 4 or 5 other babies. Today will be a rough day for us. Ginny's a fighter, but she needs to help us fight for her. Thank you to everyone for all your prayers and support.


  1. Come on Ginny, I know you have lots of fight in you. Grammie loves you so much and is praying for your strength and is fighting right along with you.

  2. Dear Ginny,
    Even though we haven't meet you yet, we love you so much! Keep fighting! We will be praying for you and your mom and dad.
    Auntie Cole, Auntie Jen, and RitaMarie

  3. Hey little (big) girl, Ginny!!! We love you so much know that you've got some great fight in you. We are praying and sending positive Karma directly to FLA from NH!!!! We love you, your mom & Dad, and Grammie & Grampa, and auntie Mel SOOO MUCH!!!!!! Love, Auntie Kate, Uncle Jeff, and 2nd cousin Kaylee =)

  4. Ginny,
    We know that you are fighting this and you will live a long, healthy life. We love you!
    Kim, John and Gwen